At Acu Chatt, we’ve used acupuncture and herbs to help lots of different people with Ehlers-Danlos Syndrome (EDS) and hypermobile spectrum disorder (HSD) over the years – including members of our staff, for example! Acupuncture may be an effective way to manage pain, support joint stability, and improve muscle tension; in addition, it offers a range of other remarkable benefits that contribute to overall well-being.
Whether you’re looking for information about Ehlers-Danlos Syndrome or EDS, have recently been diagnosed, or are simply curious about how treatment addresses this complex condition, this blog is here to both help you understand Ehlers-Danlos syndrome better and explore how we can offer relief from its symptoms! Read on to learn more about how we support our zesty zebras in getting back to doing what they love.
Quick disclaimer, the following information is intended as a reference guide only. It is in no way medical advice and you should always consult with your practitioners before making any health decisions.
Understanding Ehlers-Danlos Syndrome
Ehlers-Danlos Syndrome (EDS) refers to a group of rare genetic connective tissue disorders caused by abnormalities in the structure, production, or processing of collagen—a vital protein that gives both strength and elasticity to tissues throughout the body.
Connective tissues play a crucial role in supporting and binding together organs, blood vessels, skin, and other structures. When collagen is compromised, it can result in a variety of symptoms and complications.
There are many subtypes of EDS, each with its own set of attributes and symptoms. Unsure of the type of EDS or HSD you are experiencing? One of the great things about acupuncture treatment is that we can help you with symptoms, even if you don’t know exactly what type you may have!
The symptoms of Ehlers-Danlos Syndrome (EDS) can vary widely, even among subtypes, but common indicators include joint hypermobility, easily bruised and hyper-elastic skin, and a tendency for slow wound healing. Chronic pain, fatigue, gastrointestinal issues, and complications affecting the cardiovascular and nervous systems are also frequently experienced by individuals with EDS.
Types of Ehlers-Danlos Syndrome (EDS) include…
Classical Ehlers-Danlos Syndrome (cEDS)
Characterized by smooth, hyper-elastic (stretchy) skin that bruises easily.
Joint hypermobility is commonly observed, often leading to joint dislocations or subluxations.
- Skin hyper-elasticity and fragility
- Joint hypermobility with a tendency to develop dislocations and subluxations
- Easy bruising and scarring
- Soft, doughy skin that is easily traumatized
- Muscle hypotonia (weakness)
- Gastrointestinal issues
Hypermobility Ehlers-Danlos Syndrome (hEDS)
Primarily identified by joint hypermobility and associated joint pain.
Skin involvement tends to be less prominent compared to cEDS.
- Joint hypermobility with frequent dislocations or subluxations
- Chronic joint pain and fatigue
- Soft or velvety skin
- Easy bruising
- Gastrointestinal problems
- Autonomic dysfunction, such as orthostatic intolerance
Vascular Ehlers-Danlos Syndrome (vEDS)
Considered a more severe form, linked to an increased risk of life-threatening complications, including arterial and organ rupture. Individuals with vEDS typically have thin, translucent skin, along with distinct facial features such as a thin nose and lips.
- Thin, translucent skin that is easily bruised
- Arterial or organ rupture, which can be life-threatening
- Joint hypermobility
- Facial features including a thin nose, ears without lobes, and prominent eyes
- Easy bruising with minimal trauma
- Gastrointestinal and uterine complications
Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS)
Presents with severe muscle weakness, spinal curvature (kyphoscoliosis), and joint laxity.
Respiratory difficulties may arise due to muscle weakness.
- Severe curvature of the spine (kyphoscoliosis) at birth
- Joint hypermobility with a risk of dislocations
- Fragile, elastic skin
- Muscle weakness
- Ocular fragility, including a risk of rupture
- Respiratory complications
Arthrochalasia Ehlers-Danlos Syndrome (aEDS)
Marked by significant joint hypermobility, severe joint laxity, and a tendency for joint dislocations.
Soft, doughy skin may also be present in individuals with aEDS.
- Severe joint hypermobility with a tendency for frequent dislocations
- Congenital hip dislocation
- Hyperelastic skin that is prone to bruising
- Muscle hypotonia
- Short stature
- Facial features including a round face and a small chin
Dermatosparaxis Ehlers-Danlos Syndrome (dEDS)
Involves extremely fragile skin that may sag and be prone to tearing or bruising.
Joint hypermobility is also observed.
- Extremely fragile and sagging skin
- Severe bruising
- Joint laxity
- Delayed wound healing
- Short stature
- Facial features with a soft and doughy appearance
Brittle Cornea Syndrome (BCS)
A subtype characterized by thin corneas, which increases the risk of corneal rupture.
Acupuncture and herbs can help reduce inflammation and support corneal health. Furthermore, they work together to promote healing, offering a holistic approach to overall well-being.
- Severe thinning and fragility of the cornea
- Increased risk of corneal ruptures or perforations, even with minimal trauma
- High susceptibility to corneal infections
- Joint hypermobility (may be less pronounced compared to other EDS subtypes)
- Hyper-elastic and fragile skin
- Easy bruising and scarring
- Facial features may include a prominent forehead, wide-set eyes, and a small chin
Genetic mutations associated with EDS disrupt the production, processing, or structure of collagen, which in turn affects the normal function of connective tissues. As a result, this disruption weakens ligaments, tendons, and blood vessels. Consequently, it leads to the distinct features and complications characteristic of each EDS subtype.
Diagnosing the specific subtype of EDS typically involves genetic testing to identify the underlying mutations. However, as of January 2022, some cases of EDS may not have a confirmed genetic cause, and research in this area is ongoing. If you think you have EDS or there is a family history of the condition, a consultation with a geneticist or healthcare professional is recommended for a comprehensive evaluation – but like we said, it’s okay if you don’t have specific typing done for us to help you at Acu Chatt!
Potential Benefits of Acupuncture for Ehlers-Danlos Syndrome
Pain Relief
Chronic pain is often associated with EDS due to joint hypermobility and connective tissue issues. Acupuncture, known for its potential to stimulate endorphin release and reduce inflammation, may provide relief from the persistent pain individuals with EDS experience. Treatment also serves as a complementary pain management tool by modulating pain signals from the brain!
Reduced Muscle Tension
A lot of folks with EDS experience muscle spasms and tension, particularly around hypermobile joints. Acupuncture’s ability to promote muscle relaxation may help significantly alleviate discomfort and improve daily functioning.
Improved Joint Mobility
Joint instability and a limited range of motion are challenges posed by EDS. Acupuncture may enhance joint mobility by improving blood flow to the joints, allowing for more comfortable movement.
In addition, treatment can balance muscle tension throughout the body for increased mobility!
Treatment can also provide…
Enhanced Circulation
Since vascular complications can be a concern with EDS, acupuncture’s ability to boost circulation may help address blood flow issues for those facing circulatory challenges.
Stress Reduction
Chronic pain and the difficulties associated with EDS often lead to stress and anxiety. Acupuncture’s ability to regulate the autonomic nervous system may assist in managing stress and improving overall well-being.
Better Sleep
Sleep disturbances are common among individuals with chronic pain conditions, such as EDS. However, by reducing pain and promoting relaxation, acupuncture can help improve sleep quality, offering relief from these issues.
Improved Energy Levels
Fatigue is common among those with EDS. Acupuncture may help boost energy levels by influencing neuroendocrine pathways, such as endorphin release and parasympathetic nervous system activation. Its effects on circulation and stress responses may also contribute to overall energy improvement.
Reduced Inflammation
Inflammation often accompanies EDS, as a result leading to joint pain and tissue damage. However, acupuncture’s anti-inflammatory effects may provide a complementary approach to managing this inflammation, potentially helping to alleviate these symptoms.
Ehlers-Danlos Syndrome (EDS) is a complex and often challenging condition that can significantly affect the lives of those who have it. The diverse nature of EDS, involving both genetic factors and collagen abnormalities, underscores the importance of a comprehensive approach to symptom management. With manifestations ranging from joint hypermobility to skin fragility, a personalized treatment plan is essential.
Acupuncture offers a promising option for relieving symptoms in individuals with Ehlers-Danlos Syndrome (EDS). It has shown potential in easing pain, improving joint stability, and enhancing overall well-being. Still, as research continues and more evidence emerges, acupuncture offers hope for better symptom management and a more optimistic outlook for those grappling with the complexities of EDS. Moreover, by incorporating acupuncture into a comprehensive care plan, we have helped individuals find a path to better navigate their health and achieve much-needed relief.
Issues with connective tissues? Let us help!
If you’re considering the potential benefits of acupuncture for Ehlers-Danlos Syndrome (EDS), we encourage you to reach out to us at Acu Chatt! Dr. Jes and Dr. Jodi, our experienced and dedicated acupuncturists, are committed to enhancing their patients’ well-being and have consistently observed notable improvements, including in those with Ehlers-Danlos Syndrome.
Ready to discuss treatment for EDS? Schedule your free consultation at the “Schedule Now” link.
We look forward to helping you heal naturally!
Resources:
Doyle TA, Halverson CME. Use of complementary and alternative medicine by patients with hypermobile Ehlers-Danlos Syndrome: A qualitative study. Front Med (Lausanne). 2022;9:1056438. Published 2022 Dec 14. doi:10.3389/fmed.2022.1056438
Siminovich-Blok, Barbara. (2016). TREATING CONNECTIVE TISSUE DISORDERS WITH ACUPUNCTURE: THE CASE FOR EHLERS-DANLOS SYNDROME. The Journal of Alternative and Complementary Medicine. 22. A42. 10.1089/acm.2015.29000.abstracts.
Dommerholt, J. (2024, March 16). Dry needling and hypermobility. Myopain Seminars. https://www.myopainseminars.com/resources/blog/dry-needling-and-hypermobility/
1 Comment
healxo · November 6, 2024 at 10:25 am
Your ability to distill complex concepts into digestible nuggets of wisdom is truly remarkable. I always come away from your blog feeling enlightened and inspired. Keep up the phenomenal work!
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